For Ehlers-Danlos (EDS) patients
Vaely for eds.
EDS does not stay in one specialty. A genetics appointment, a cardiology consult, a pain-clinic visit, a physical-therapy session — all in the same month, each asking the same questions, none of them seeing your whole record. The Doctor Report is the same page everyone needs.
Vaely lets you keep one log across every appointment. Joint subluxations, autonomic symptoms, GI flares, fatigue, the rest — all in one place, all printable as one PDF.
The appointment problem
What your doctor needs.
What you forget to bring.
What geneticists, rheumatologists, and pain specialists actually need
- Subluxation and dislocation frequency, by joint.
- Daily pain levels by location (joint, soft tissue, GI, headache).
- Autonomic symptoms — POTS-overlap heart-rate changes, gastric dysmotility, temperature dysregulation.
- Skin-fragility events — easy bruising, slow wound healing, stretchy-scar tracking.
- Medication trial history including off-label combinations many EDS patients accumulate.
- Functional impact across the day — energy ceiling, brace/orthotic use, mobility-aid days.
What every eds patient forgets
- Which joint subluxed last Tuesday vs which one was Wednesday's.
- Whether the new PT exercise made the shoulder more stable or just hurt differently.
- How many GI flares this month and whether they tracked the bad-pain weeks.
- The exact reason the last specialist said no to a referral.
- How many mobility-aid days vs non-aid days you have had since the last visit.
How Vaely fits
A record that does the remembering.
Whisper the symptom as it happens.
"left shoulder subluxed bending to pick up the cat, popped back in, pain six, taking rest day" On-device AI extracts the dose, the symptom, the severity, the time. You review. The journal saves. The form goes away.
Watch the timeline draw itself.
By the next appointment you have weeks of structured entries — severity arcs, medication timelines, symptom-frequency charts. On AI-capable iPhones, weekly summaries and pattern observations surface what shifted, automatically and at no additional cost.
Hand over the Doctor Report.
One tap. A polished PDF — executive summary, charts, medication arcs, your verbatim journal at the back. Headed Personal Wellness Journal Summary — Not a Medical Document. Structured for the eleven minutes your geneticists, rheumatologists, and pain specialist has with you. Free tier: three reports per year. Pro: unlimited.
The privacy claim, briefly
Your eds log can never be subpoenaed from our servers.
Because there are no servers.
The AI runs on your iPhone. Your EDS log lives in a local database we cannot read. The App Store privacy label reads "Data Not Collected" — verified by Apple. EDS patients often hold years of medical history their next specialist has never seen. The record stays portable, on your terms.
The next specialist follow-up is on the calendar.
You can walk in ready.
Free to download. 3-day free trial on Pro. Reduced Rate at $29.99/year for anyone on disability or limited income — no questions asked.
Or read the free guide: How to talk to your doctor about chronic pain.